Rheumatoid Arthritis has affected my life in many ways. I was diagnosed 15 years ago, though I believe the symptoms started earlier. Physically, I can no longer do some of the activities I loved. I used to climb Scottish Munros and spend hours hill walking, but now I’ve had to adapt. These days, I stick to gentler walks and ride my horse when I can. 

Like many people with arthritis, I live with constant pain – always there, like background noise. On top of that, I have other conditions, including Fibromyalgia. My treatment involves tablets and two injectable medications. What’s harder for others to understand is the brain fog, extreme tiredness, and frustration. You want to do things, but your body slows you down, and everything takes longer. 

Caring for Mum 

My mum is 92, blind, and living with Alzheimer’s. She’s fiercely independent, but carers visit twice a day to help with medication. I manage everything else – her banking, shopping, changing the bed, and even setting up the TV. For peace of mind, I monitor her front door via a camera. 

Sometimes she needs me late in the day, which can be tough when I’m exhausted or in pain – but I go because there’s no one else. I keep a detailed diary for appointments, prescriptions, and utilities. It’s a lifesaver when brain fog hits. 

Staying active and volunteering 

I walk to Mum’s most days – just seven minutes, but it counts as exercise. On bad days, I drive. After a hospital stay, I joined a local walking group for fresh air and mental health. The walks are short, but they keep me moving. 

Sundays are for riding. Spending time with my horse and friends lifts my spirits, even if I ache afterward. Living alone and caring for Mum means conversations can feel repetitive, so outside interests are essential. Short, regular exercise works better for me than the gym – I need energy for caring. 

Looking for support, I discovered Arthritis UK’s self-management course. It taught me pacing and the importance of staying active to reduce pain and maintain independence. Later, I joined their online support group – and now I run it! I’ve also trained in Chi Me, a Tai Chi-based program designed to help people with arthritis. 

My advice to other carers 

Find outside interests, even in small doses. It makes a huge difference to wellbeing. Next on my list? Yoga and Pilates – manageable sessions that fit around caring duties. 

Above all, look after yourself and don’t lose who you are.